My friend Glenn M. of Cathedral City California sent me this story of him and his late partner Michael Wilson.
I've written about Glenn before. Three years ago, January 14, 2021, when I thought I had lost Bill I received a note from Glenn. I did not know Glenn but I knew of Glenn. He was the partner of Michael Wilson, who frequently commented on my blog.
For years Michael had left comments on my blog then abruptly he stopped. That happens sometimes with blogger commenters. A good example is that I haven't heard from Woody of Ohio. I hope he is doing well. But back to Michael.
About six years ago his comments no longer appeared on my blog. This was about the same time that I called him on the phone to thank him for a Harry and David gift package he sent to me from him and Glenn for Christmas. This was the first time I ever talked to him. I thought out conversation went well, then nothing. I realized about three months later that he was no longer leaving comments on my blog. I found out from Glenn's note that Michael had become very sick and Glenn was caregiving for him the last three years of his life. That explained why Michael was no longer leaving comments on my blog, he couldn't see. Michael also had macular degeneration like my Bill. Bill couldn't see either at the last three years of his life which caused him great discomfort. And yes, I also was Bill's caregiver for the last three years of his life.
I talk to Glenn frequently on Zoom and he's already been a guest at my home here in southern coastal Delaware. In June he and my friend Pat F. from Canada are coming for a visit. They'll be here a week and then we'll visit our friend Don McK. in Philadelphia.
Glenn has been a great help to me in adjusting to my new life being Bill's caregiver and now dealing with my grieving of losing Bill for the rest of my life. Glenn wanted to leave a comment on my blog about Michael. He couldn't because the story was too long for a comment. I told him I could post it to my blog which is what I am doing now. I've also included a short video montage of Glenn and his Michael throughout the years. Two Golden California Boys.
I hope you enjoy it.
5-4-2024
I AM GLENN.
Thank you so much Ron, for mentioning me and posting that wonderful picture of Michael and I, along with our wonderful backyard in our first home in Studio City. You have been, and continue to be, such a wonderful friend to me. You have greatly helped me, and in turn I hope I have helped you.
If your readers are interested, here is my somewhat long story leading up to losing my beloved Michael...
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| 1985 Michael Wilson |
I met Michael on July 4, 1986, at a bar in West Hollywood, California, on Santa Monica Boulevard called “The Rafters”. I was there with my boyfriend of two months at the time who I’ll call “Dan”. We had just spent a few hours at a Fourth of July pool party, and four of us had decided to go get a drink somewhere. Dan and I were not really clicking with each other lately, and I felt that our short relationship was nearing its inevitable end. I went to get myself another Coke at the bar, where a very handsome man was standing. He started talking to me. I was enthralled. He was gorgeous, kind, sincere, and easy to talk to. His name was Michael. After at least an hour of chitchatting, Michael said he was starving and would I like to go have dinner with him. I said yes, but had to say my goodbyes to Dan, who eagerly encouraged me to go with Michael. That was the signal I needed that Dan too felt that our relationship was over. I never saw Dan again.
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| 1987 Michael and Glenn Tuscon Arizona |
So began my love affair with Michael. I think I fell in love with him during that first hour of talking to him. We moved in together a few months later into a tiny half of a duplex in Hollywood that we rented for 6 years (near Melrose and La Brea). In 1994, I was able to afford my first home, a tiny 1,000 sq. ft. home in “The Valley” (Studio City to be exact). Michael and I were thrilled to not have to rent anymore. I was 38, Michael was 44. Along with the entire country, we celebrated our anniversary every Fourth of July.
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| Michael with avocada tree |
By then, Michael’s vision had started to deteriorate. He had contracted CMV Retinitis a couple years before, an eye disease that destroys your retina, turning it into Swiss cheese. In both eyes. As a result of his immune system getting destroyed. By HIV. Which had turned into AIDS when his T-cells were down to 50. Which is why the CMV Retinitis attacked his eyes. (Normally strong immune systems can easily fight off CMV Retinitis.)
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| 1990 Michael Wilson |
We were very happy together and very much in love. I worked full time. Michael worked part time and took care of the house.
By 2010, Michael’s vision was pretty shot. He couldn’t drive, couldn’t take walks on his own, and couldn’t work. He was on permanent disability. By then I was working 50-60 hours per week in my promoted position as a very well paid I.T. Manager. By then, Michael had dozens of eye surgeries, had all the liquid replaced in both eyes with silicone, and had spent 2 years in the early 1990’s doing IV drips of a strong drug to keep the CMV Retinitis from getting worse. Each morning, while Michael made us some breakfast before I had to go work, I would set up his IV drip. After breakfast I would plug him into his drip line, kiss him goodbye, and go off to work. It would take 2 hours for the bag of medicine to drip into the permanent PICC line that had been inserted into his left arm. After the 2 hours, he would disconnect himself, close off his PICC line, and clean up. The process would repeat itself when I would get home in the evening. 2 hours of an IV drip, twice a day, for 2 years. It took a huge toll on his kidneys. He was now in Stage 4 Kidney Disease, on top of still being classified as having AIDS, and now with severe kidney disease.
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| 1991 Michael and Glenn |
By the end of 2010, I was feeling horrible having to leave Michael every day for at least 10 hours. He had nothing to do, no one to see, nowhere to go, couldn’t do any hobbies, and could barely see the T.V. (I had bought a huge 75” T.V. for him, where he would sit on the coffee table, his face a foot away from the T.V. so that he could sort of see what was going on.) He didn’t have much of a life. He would call me a dozen times each day just to hear my voice. I loved hearing his voice. I so miss his beautiful voice.
By then, I was at the top of my career, getting paid very well. After much thought and much financial analysis, in early 2011, at the age of 55, I retired 10 years sooner than I had anticipated so that I could take care of Michael.
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| 1991 Michael in San Francisco |
It was a simple choice. Work another 10 years and gain a lot more money so that we could have a fabulous retirement, or quit now and live modestly. The former would require Michael to not have much of a life, the latter would allow me to keep him company. It was an easy choice. I chose to give up over $1 million dollars of income, and give Michael some very needed companionship. To give him a life.
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| 1990 Glenn and Michael and nephew |
So began our last chapter together.
A few years later I finally paid off my 30-year mortgage (in only 20 years), and by 2017, I was finally in a position (thanks to the real estate market) to sell our little 1,000 sq. ft. house and buy a much nicer home, a little farther away, in a community called Chatsworth in the northwest corner of Los Angeles. We were thrilled to have a big, beautiful 2,500 sq. ft. home with a pool for the first time. It was a dream come true. We had spent decades planning and saving so that we could eventually upgrade from our “starter” home. Before his eyesight had deteriorated, Michael used to clip coupons to save money at the grocery store. We had lived frugally and had lived a modest life, all with the intent of some day being able to afford a bigger him with a pool, to enjoy in our long retirement together. Our dream had finally become a reality.
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| 1992 Michael and Glenn Christmas at home |
That Chatsworth home was everything to us. It was a house of joy, in a beautiful neighborhood, on a quiet cul-de-sac, with very kind neighbors. A triumph of a life-long dream, feeling so proud and amazed that I could afford us such a beautiful big home for us to live out the rest of our lives in.
But Michael’s health was deteriorating rapidly. In and out of the hospitals. Procedures and surgeries. His gall bladder was removed. Multiple shoulder surgeries. His A-Fib got so bad they had to stop and start his heart twice in two years. Stents were put into his arteries. Minor heart attacks. On and on. The problems kept getting worse. Our kitchen cabinet was a virtual pharmacy. It would take me an hour to sort out all his medications for the week.
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| 1992 Capilano Bridge, Vancouver, Canada |
We were going to host a big family Christmas party at our house in 2019. But Michael had been getting weaker and weaker. On December 23rd, I finally took him to the E.R. Michael had severe critical anemia (thanks to the A-Fib medication he was on). Two transfusions of blood. Christmas party cancelled. I went to visit him every day, and he was allowed to return home after a week.
Then the pandemic hit. March of 2020. I had just bought a brand new car a few months ago. It just sat in the driveway for a year.
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| 1998 Michael with Tiny Tamm |
In September of that year, I turned 65. Michael would turn 71 the following month. Michael was outside trying to water some plants as best he could. He wound up the hose, stood up, got dizzy, and fell over onto the concrete patio. I heard a scream I had never heard before. I ran outside to find Michael screaming in agony on the ground next to the hose. He kept saying his hip, his hip was killing him. I called 911. I propped up his head up with pillows and tried to comfort him. He was in agony. The ambulance arrived. Everyone, including Michael and I were wearing masks. They rushed him to the hospital. They told me not follow. No one is allowed in any hospital unless you are admitted as a patient or work there. I was to call the hospital in the morning.
It was a severely broken hip. Titanium rods were surgically implanted. I was not able to see him for the 10 days he was in the hospital. I was beside myself not being able to see him. But we talked on the phone several times each day. He finally came home and I was so relieved.
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| 2008 Glenn and Michael - so in love |
He was not allowed to walk for several weeks. His legs started to swell up. We figured it was because he was so sedentary. He was finally given the okay to start walking. But his legs kept swelling up. Then they started to ooze some clear liquid. The doctor prescribed a small dose of a diuretic to help rid his body of the excess fluid in his legs. But not too much, the doctor said, considering Michael’s kidneys were still at Stage 4 Kidney Disease. Too much diuretic could push his kidneys into Stage 5, which would then require dialysis. Michael had told me many times that “the day I have to go on daily dialysis, on top of everything I’m dealing with, will be the last day of my life”. He was deadly serious. I was getting very stressed out about his swollen legs and the diuretic factor. I anguished over whether he would truly end it if his kidneys got worse.
By this point, after decades of being in and out of hospitals, the thought of going back to the hospital yet again, for his worsening swollen legs problem, on top of both of us doing everything we could to not get Covid, he refused to let me call 911. I couldn’t blame him.
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| 2009 Michael's 60th birthday |
But the swelling would not go down. It kept getting worse. His doctor didn’t know what to do, and could not prescribe more diuretics. So finally, Michael agreed that I should call 911.
Unfortunately, the local big hospital he was supposed to go to was so full of Covid patients, that they refused the ambulance carrying Michael. So they took him to another hospital, a very small hospital, where they quickly discovered that his leg swelling was being caused by poor circulation, which was caused by a damaged heart valve, which had been damaged from decades of strong and harsh medications, including the medications for his CMV Retinitis all those years ago.
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| 2009 Michael and Glenn 23rd anniversary dinner West Hollywood, California |
Also unfortunately, that small hospital had no heart department and could not fix his heart valve. So Michael had to lay in that hospital bed for 7 days until they could find a single room, in any hospital that does heart procedures, anywhere in Southern California. This is November of 2020. The middle of the Covid pandemic. No visitors. I could not see Michael. But we talked each day.
Finally, a single bed opened up at the huge Huntington Hospital in Pasadena, where they do heart procedures. Michael was quickly transported. However, during that 7-day stay at that small hospital, in their infinite wisdom, without consulting me, they administered very high doses of strong diuretics into Michael. By the time he got to Pasadena, he was in Stage 5 Kidney Disease. They told Michael he would have to be on dialysis for the rest of his life. That was it. He was done. He ripped out all his tubes and said he was done. He told them he just wanted to go. “Please let me go now, I want to go now”, he kept yelling at the nurses. So they sedated him, and plugged everything back in. Then they called me to let me know what was happening.
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| 2010 Michael and Glenn |
Michael’s heart valve was severely damaged. There is a permanent procedure to repair it, but it would not be done for several months because Covid had caused a massive backlog of surgeries. But, they were getting everything ready to temporarily put a stent (or something) into his heart valve to make it work pretty good, at least until they could perform the surgery to repair or replace his bad heart valve in a few months. As for the dialysis, they told me that his kidneys may very well recover a bit, back to Stage 4, and Michael might not have to go through dialysis. I had hope. Michael had a ventilator down his throat and was constantly sedated.
I kept calling day after day, but he was always sedated. I was going out of my mind. It was now 10 days since I saw him.
The procedure to temporarily fix his heart was a full success. His swollen legs were recovering. He would probably be able to go home in a week or two. Relief! Michael will be coming home, and he was not sedated as much. I had bought an iPad, and thanks to Facetime, for the first time in two weeks, Michael was able to see a human face… mine. I could barely contain my emotions. I was an emotional wreck by then. This had been the longest we had ever been apart. Although legally blind, he was able to make out my face, and his hearing was excellent. The nurses would graciously place their iPad close to Michael’s face each time I’d call.
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| 2012 Glenn and Michael with Tammy |
I couldn’t stop telling him how much I loved him, how well the procedure went, how he might not need dialysis after all, and that he’ll be coming home soon. He was groggy, couldn’t talk with the ventilator still down his throat, but would nod his head. I knew he understood me. I knew he was trying to say he loved me too and that he desperately missed me. I knew. We were each other’s everything for over 34 years by then.
Several times a day I’d Facetime with Michael. Lots of love, lots of encouragement, lots of hope. Trying my best to keep on a brave face for him. Day after day. So grateful that technology was able to allow Michael to see an unmasked human face, and for me as well to see his still so handsome face. I so miss seeing his beautiful face, that face I fell in love with which forever changed my life, that wonderfully fateful day all those years ago.
It was at 10pm I got the call. A couple days before Michael was coming home. I hadn’t seen him in person for nearly a month. I was exhausted with the emotional drain of it all. I was crawling into my lonely bed yet again. I glanced at the phone and the call was from “Pasadena Hospital”. I knew. I knew something terrible had happened. They never called me this late. “Hello Glenn? This is Dr. SoAndSo. I’m the attending physician in care of Michael. Michael is fine now. But, his heart stopped. I was able to resuscitate him and we got him back. He’s fine now. However, his heart has stopped beating 3 times in the last hour. And 3 times I was able to successfully resuscitate him. But Glenn, I have to ask you an important question. Every time I resuscitate him, I end up breaking his ribs. Several ribs are already broken, and more will be broken if this continues. So my question to you is... although Michael is fine now and stable, what do you want us to do if his heart should stop beating yet again?”
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| 2016 Glenn and Michael so in love after 30 years |
I knew exactly what the doctor was saying. I had a few seconds to decide whether the love of my life, my everything, my one and only, should live or die if his heart should fail again for the 4th time. How does one make such a decision, in a few seconds. But the answer was so clear to me, instantly clear to me. The choice was... force Michael to have more broken ribs, force Michael to endure yet more agonizing pain, on top of everything he had gone through, for decades and decades. Or, let him go. Release him of all the nightmare he’s gone through, and will continue to go through, with so many procedures, pills, surgeries, and his blindness.
I answered… “no, please do not resuscitate him again if his heart should stop again. I cannot have him come home with yet more pain and suffering for who knows how long. He’s been through more than anyone should go through. So no, do not resuscitate him.”
“Very well” the doctor said. “I’ll call you in an hour with an update.”
I sat on the side of the bed, numb. Is this truly it? Is this truly the end? Is our life together really ending?
And then it hit me. I may never see Michael again. I rushed into the computer room, and scoured through decades of photos looking for any photo of Michael I could find. Through tear-filled eyes I desperately searched. Folder after folder. I had such an urgent need to find every photo of my beloved.
10 minutes later the phone rang. I knew. Again, I knew. It was over. This time there would be no doubt. “Hello Glenn? I’m sorry to tell you, but Michael’s heart just stopped again. And as per your wishes, I did not attempt to resuscitate him. I am so sorry for your loss.”
I couldn’t speak. “I’ll have the nurse call you in a few minutes if that’s okay”. “Yes”, is all I could mutter.
That’s the moment my life shattered. My world collapsed under me. I could feel myself falling, falling, into a bottomless pit. My heart was utterly broken. My mind was reeling. My soul began to cry.
My wonderful life with Michael was over. It would never be the same. I will never find another Michael. I will never be happy again. I will never find love or have joy again.
And so began my months’ long journey through Hell.
5 minutes later the nurse called. She said that although it is strict hospital policy that absolutely no visitors are ever allowed in the hospital because of Covid, they have one, and only one exception. They would allow me, and only me, to come out and sit with Michael for a maximum of 30 minutes, with a mask on, if I so wanted to. Without hesitation I said yes, it’ll take me an hour to drive there, but I’m on my way.
Grabbed my keys, wallet and phone and raced out to Pasadena. Got lost, overshot the exit, could barely see any signs because of all the tears. Finally made it there. They checked my temperature, made sure I had my mask on, and escorted me towards Michael’s room. As soon as I saw his covered legs through the open door, I lost it. My knees buckled under me and the two nurses caught me and helped me into Michael’s room into a chair. I am so grateful to the hospital for allowing me to spend those 30 precious minutes alone with Michael to say my goodbyes. So, so grateful. Then it was time to leave. How do you say a forever goodbye to the love of your life? One last glance of him before leaving his room.
Another hour drive back home. Again, I couldn’t read the signs, overshot my freeway exit, and had to back track. It was over 1am when I got home.
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| 2019 Michael and Glenn's 39th birthday |
It’s been 3 years now. That wonderful home in Chatsworth became a house of pain for me. A house so terribly empty without Michael. I ended up selling it and moving out to the Palm Springs area. I am still in mourning. I will always miss Michael. I have his ashes with me in a beautiful box which gives me great comfort. I talk to him periodically, and I look forward to hopefully seeing him once again when my time comes.
Time heals. But it will never fully heal. Losing Michael was so, so much worse than losing all my friends to AIDS in the 80's and 90's, worse than losing my parents and other family members. It crushed me. It destroyed me. For months I couldn’t eat, couldn’t sleep, couldn’t think. I lost 60 pounds. My neighbor screamed when she saw me so thin. She asked what happened. She cried. We both cried. I am so grateful for my family and friends who did their best to comfort me. Unless you’ve gone through such a devastating loss, it’s difficult for most people to truly empathize. But their kindness and sympathy did help. Talking and a hug does help.
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| Glenn, October 17, 2022 Cape Henlopen State Park, Delaware |
Things are better now. I have family. I have wonderful friends. Although I’ve cried a billion tears, my life has happiness, joy, and fulfillment once again. My heart will never fully heal. And that’s okay. I’m doing okay.
Glenn