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Friday, December 31, 2021

Betty White 1922-2021

 

BERJAYA
Betty White

Our national treasure Betty White died today.

Betty was just weeks shy of her 100th birthday.

Upon hearing of her death while I was in the kitchen (I will always remember where I was), I felt a gut punch in my stomach. 

While her death was not unexpected at her age, whenever a much loved icon like Betty dies, it's a gut punch. Also, this is one of the few times I teared up. I even choked up. Like millions of my fellow Americans, we all loved Betty. I don't know of anyone who didn't love Betty.

And I have a special reason for sadness of losing Betty. For you see Betty has always been associated with my Mother who was also named "Betty." Not "Elizabeth" (like Betty White) but "Betty." 

My Mom was born in 1923, one year later than Betty but almost the same age, Betty White was born in 1922.

I remember the first time our family saw Betty White on TV. It was the Fifties and Betty had a black and white TV show called "Life With Elizabeth." My father and all of us were struck by the strong physical resemblance between Betty White and our "Betty" (nee Hadfield, married name Tipton). 

My Mother died at age 87, in 2010. She didn't make it quite as long as Betty White but like Betty White, I never knew anyone who disliked my Mother. Yes, I was one of the lucky ones, my brothers and I knew we had a great mother. Our father? Perhaps not so much but Mom? Absolutely the best. 

Betty White may be gone but thank goodness we will always have our recorded memories of her goodness, humor and good will. If there is a Heaven, perhaps she and my Mother will finally meet.


BERJAYA
Betty (Hadfield) Tipton

By the way, my "Betty" also loved animals.


Thursday, December 30, 2021

Waiting For Godot

 

BERJAYA


All day I've been waiting for Bill's hospice nurse for her weekly visit. 

Bill and I take a one to two hour nap in the afternoon, generally starting around 2 PM. I've asked her to visit in the morning or late afternoon after our naps. 

Unfortunately, she is so overloaded with patients she is visiting she can't always keep to this schedule. Today is one of those days.

It is now a few minutes after 4 PM. She texted me that she would call "in a bit."  "In a bit" can be anywhere from a few minutes to an hour or more.

I don't blame her, it is the nature of her job. Still, This will be another screwed up day for my rest. Yes, sometimes it is all about me.

There are a couple of other situations I've been waiting a long time to come to completion.

One of them is fixing that seal around the sewer pipe that goes out of our wall downstairs behind our finished wall to wall carpeted Media Room. A few years ago I discovered that water leaked down the wall to the floor and underneath the drywall to the Media Room. I only detected it by the smell of fungus that grew over time. How many months or years it was leaking on the floor I do not know but long enough to cause me to rip up the media room rug and replace it and some cost of time and expense. Actually the new rug is better so some good came of it. 

Bill fixed the leak and it lasted about three years but now it leaks again.  After a heavy rainstorm droplets leak down the wall to the basement floor behind the drywall to the Media Room. I contacted with a local leak specialist last November to repair it. He specializes in crawl spaces and leaks like we have here. Since then it's been one delay after another. The latest delay is that he has COVID and is in quarantined but I was assured by his office this morning that I'm "first on the list." Again, I'm trying to be patient and realize that in this Age of COVID life will not be normal. There will be delays and my basement wall leak is way down on the list. But Bill constantly asking me "When is he going to fix it?" is driving me crazy. I'm confident he will fix it.  He's already been out here and surveyed the situation and I have confidence in him and he has all excellent reviews on Yelp. But I await completion, hopefully by the end of January. We shall see. In the meantime the one thing for sure Bill will ask me again, sometimes several times a day "When is he going to fix the leak?"

Then there is my sunglass frame delay. I broke my excellent Timberland wrap around sunglasses some months back. I went to BJ's looking to replace the frame. They told me they didn't carry that designer frame any more but I could order it directly from Timberland. I did my Internet research and found a company where I could get this frame. I ordered it last November 30th and received a confirmation letter. Then nothing. Nada. I called their customer service number this morning (with my friend Larry as a witness on Zoom). The customer service rep told me the frames were on "backorder" and they expected it in at the end of January. That's TWO MONTHS folks. 

Be patient Ron. Don't be one of those difficult, unreasonable customer demanding the impossible. 

It's not all doom and gloom on the customer service front here at Casa Tipton-Kelly. When I called for my annual eye examination appointment and was told my doctor couldn't see me until May 24th I took matters in my own hands and scheduled an eye appointment with another doctor, who as luck would have it had a cancellation and took me in two days after my call and at 10 AM in the morning, my preferred appointment time. Late enough in the morning so I don't have any toilet issues and early enough so I could have lunch and my afternoon nap.

But here I wait for Bill's hospice nurse to call. It is now 4:20 PM. And here I rushed through lunch half expecting her to call just as I was placing a spoonful of that delicious homemade White bean potato kale soup into my hungry mouth. I made it through lunch without any interruptions to feeding my face. 

When I go on whining like this I always have to stop and put things into perspective. I'm alive, I'm (reasonably) well, I can move around (without too much pain) and I have a roof over my head and no mortgage. What's to complain about? But it's my nature. As Pat says, "Could always be worse. We could have third world problems." 

Indeed.

Wednesday, December 29, 2021

Happy Birthday Pat!


BERJAYA
Pat isn't big on his birthday celebration


 Today is my good friend and soulmate Pat's 73rd birthday! 

Happy birthday Pat!

Pat came into my life eight years ago through a serendipitous route. 

I always knew I would meet Pat. 

As the song says "Looking for love in all the wrong places" (or something like that). 

Even though I've been with Bill for the past fifty-seven years and will be with him until the end (for either one of us), I was always looking for a "Pat." 

When I met Bill all those years ago and he asked me to move in with him I turned him down initially because I told him "Even though I like you, you're not the one." Bill asked me to move in with him anyway and said I would always have my "freedom" to do what I wanted to do (hang out at the bars, which I did), as long as I was discreet about it. And if nothing else, I am discreet. He also said that if I ever met anyone else he wouldn't "hold me back."

Well, over the years I've met some clunkers and thank God I didn't leave Bill to go with them because all of them would have failed. They didn't love me, it was always one sided. Bill always loved me and in time I grew to love him. That's why I could never leave him now.

When I moved in with Bill it was because he wanted my company and also a move of convenience. He traveled a lot with his job and was gone for months. I could watch his garden two bedroom apartment in Pennsauken New Jersey. Also, I had got a new job at Girard Bank in Philadelphia (a short bus ride from Pennsauken) and could easily commute to my job while I was hanging out at the gay bars looking for Mr. Right. Ironically, many years later I did meet a "Mr. Wright". What an absolute disaster that was but I digress.

To be back to the main purpose of this blog post today. I want to wish my good friend, "little brother", and travel mate Pat a very happy birthday. 

Happy birthday Pat!


BERJAYA
Pat (holding guitar on the right) with his band "The Bobcats" back in the day. He was a redhead back then. I wasn't into redheads. Just goes to show you, one never knows who fate works out.


Tuesday, December 28, 2021

Where Are The Heroes?


BERJAYA


 One type of movie I never see are the super hero movies. Why should I go to the movies to see make believe heroes when we can't get any in real life? 

I'm talking about our country today. Our country where everybody knows that our former president Donald Trump tried and failed at a coup to overturn the free and fair election. 

I'm talking about EVERY Republican save two who support the BIG LIE. Why do they support the BIG LIE? Because they're ALL COWARDS. Yes, no super heroes among that crowd. Except for Representatives Liz Cheney and Adam Kinzinger, NOT ONE OF COURAGE.

There are courageous people in our country but they're not in Congress. 

I understand how Trump's cult followers believe his BIG LIE. It saddens me that so many hate Democrats and "the libs" so much that they would forsake our country to a malignant evil like Trump. 

But one thing that continues to shock me is the absolute cowardice of all those Republicans in Congress who are afraid of Trump. Afraid of losing their jobs. Afraid of telephone death threats from the Trump Thugs. Well, maybe I can understand the death threats. 

So here we are folks. President Joe Biden, clearly past his prime, is leading our country. Senator Joe Manchin and Kristen Sinema are more concerned about being reelected than doing what is right by our country. Biden, perhaps the worst person to communicate to the American public. Biden, who can't complete a sentence without stumbling over his words. Oh sure, he's a stutterer. Well, I was too but I overcame it. I just think Biden is in cognitive decline. 

Then we have the anti-vaxers. You know folks when I joined the Army one of the first things they did was give me FOURTEEN vaccinations. I didn't die. I didn't whine about "losing my rights." For chrissakes babies, you're NOT losing your rights when you get a COVID vaccination. You saving your life and your fellow human beings by not passing the virus. 

I have to admit folks, sometimes these days I am just exhausted knowing all this information. The Republicans who are obstructionists and majority of whom believe the BIG LIE from Trump, who they know is a liar. Trump, who has led a lifetime of crime and gotten away with it and will continue to get away with it because the feckless Merrick Garland is our Attorney General. Garland won't hold Trump accountable because he fears being seen as partisan. He doesn't want the reputation that his predecessor Bill Barr has as the president's lawyer. Sad Merrick Garland, can't see past his own nose and  see that he is permitting Trump to be above the law.

I feel sorry for young people these days. Dealing with COVID, which will probably be with us forever and the failure of most of our political leaders, of both parties. 

My apologies for posting a political post but these feeling have been stirring within me for sometime now and I just had to life the lid on this boiling pot.

The one thing I thought I always had in my life was living in a country that was a true democracy. Where our leaders did the just and fair thing. Those who were evil and broke the law were brought to justice. It so saddens me to realize that real life isn't like that. Trump and his thugs and enablers and the Republicans will continue to get away with destroying our country. I try to get some solace knowing that there are many in our country who are good but unfortunately there are many who are not and they seem to be gaining control. And I despair.



Monday, December 27, 2021

Relaxing With The Mulch Pile

BERJAYA



 Ever wonder what I do to relax? 

I lay mulch. 

Sounds exciting, eh?

To me, laying mulch is relaxing. Caregiving for Bill pretty much takes up a good portion of my day (and sometimes night), I find I need some respite from those responsibilities. Laying mulch is one way I get some respite.

In years past I would pay Fernando and his son Alfredo (one of the many Mexican immigrant workers in our area of Sussex County, Delaware), to lay my six to ten cubic yards of mulch. This year I don't have the discretionary income to pay someone else to lay my mulch. Not working at the hotel takes about $12,000 off of my annual income, that's a chunk folks. 

Fernando and Alfredo would lay the mulch in one day. Of course at my age I'm not physically capable of laying six cubic yards of mulch in one day. Oh I could try but I would probably end up in an arthritic heap of pain at the end of the day. So what do I do? I set a goal to two wheelbarrows of mulch a day. Overtime I accomplish the same result, plus I get exercise and I SAVE money.  I have to admit I did enjoy seeing the guys lay mulch while I relaxed in the comfort of our house but in these challenging times extreme measures are called for. Plus, as I mentioned before, I GET EXERCISE.

I don't lay mulch every day. I'm dependent on the weather for the days I lay mulch. Like today, cold and wet, I didn't lay any mulch. However, lately we've been having many mild days and on those days I'm out back at the edge of our almost one acre lot, shoveling that mulch in a wheelbarrow. 

By the way, this photo was taken of an aborted video that Bill took of me. Since Bill has had his strokes, he can't figure out how to hold my iPhone to take a picture of a video of me. I set the video or photo and tell him to hold my iPhone, hoping he doesn't drop it.  You know me, I have to memorialize with photos and videos of all my activity. I have no one else around here to do that unless I set up my tripod and set my iPhone camera to a timer. Lots of prep for just one picture or video. But maybe I'll do that next time though. I spent more time with Bill trying to get this picture than I would setting up a tripod and timer.



Sunday, December 26, 2021

Got Through Another Christmas

BERJAYA
Bill's Christmas card to me

 Ah, the day after Christmas, another Christmas goes into the memory bank. Always seemed anticlimactic to me. 

I am one of those people for whom Christmas is a rough time. In the past I've been able to deal with Christmas by volunteering for work on Christmas Eve and Christmas Day. In the past fourteen years that was at the hotel where I worked. On Christmas Eve I would watch the 1951 movie version of "A Christmas Carol" with Alister Sim. I don't know why, but that always gave me a level of comfort, being in the hotel by myself with only a few grandparents in town to visit their married children and grandkids. They stay at the hotel because they can only take so much of their grandkids energy. These folks are invariable nice and we always have a good chat.

However, this year I'm not working at the hotel because I have to be here for Bill. 

Bill and I stopped doing the Christmas Ritual many years ago. We both like the bright multi-colored lights and an occasional Christmas song but spare both of us the "Ho! Ho! Ho!" (which I dread, there's always one person or commercial that inflects that pain on us every Christmas season). Who says "Ho! Ho! Ho!" anyway besides the phony Santas in the flood of Christmas season commercials everything from cars to Flex Seal?

Our private and personal way of celebrating the Yuletide is exchanging Christmas cards. This year I didn't get Bill a Christmas card because of his eyesight, he couldn't read it. If I could get a Christmas card that had blinking lights, he would like that (he likes light which he can see, color is even better). But a card with syrupy sentiments? Not so much. 

This year though Bill gave me a card that he made personally. Folks, this was the best card ever! Bill worked for weeks to write his feelings on the card. Bless his heart. He tries so hard. I could read his card. This man, who has devoted his life to me. To making me happy, secure and content. Few people are as fortunate as I am. 



Saturday, December 25, 2021

Merry Christmas 2021

 

BERJAYA
Bill and me from a couple weeks ago at the hotel where I used to work. They always have the best Christmas tree. This is our official 2021 Christmas picture!


Merry Christmas to all my longtime and new blogger friends!

Bill and I made it to another Christmas. We are indeed blessed. 

We'll spend a quiet day here at home. Bill and I stopped exchanging presents many years ago but we continued to do Christmas cards. Sadly this year I won't be giving Bill a Christmas card because of his failing eyesight. But I will be spending the day with him, just the two of us which is the way we prefer to spend our Christmas days. 

It was interesting returning from my walk this morning. My widowed neighbor had six cars parked outside his house. Our house just had one car, my Subaru Forester in the garage. If an alien just got off the spaceship they could easily identify where the gay couple lived. Most of us just don't have that extended family. Not complaining, just the way it is. 

The temperature is 56 degrees now. I'll lay a bit of mulch (still working on that mulch pile) and then take Bill for his daily ride, probably just down the end of Oyster Rocks Road to the Broadkill River.

Tomorrow life returns to normal. 

I hope everyone who is reading this blog posting is having a wonderful Christmas, with friends and family or even alone.


Friday, December 24, 2021

Christmas Eve 2021


BERJAYA
Bill and Sparky Christmas 1980

 Here we are again folks, another Christmas Eve. 

Bill and I have nothing planned today. Oh maybe I'll lay a couple of wheelbarrows of mulch (exercise and get that mulch pile down). And of course take Bill for his daily ride to get him (and me) out of the house.

We have nothing planned today other than to just be at home with each other. And that folks is more than I expected.  When Bill had his two strokes this past year on January 12th and 14th, I thought that was it for us. But we're still here, albeit adjusted for the significant change in our daily lives. Now I am the "dad" (caregiver) and Bill is the child. I would have it no other way.

The photo above is of Bill and one of our earlier Pomeranians. His name was "Sparky" and he was Bill's favorite. Sparky spent most of his life at our townhouse in Philadelphia with our other Pom called "Hamburger" (because he liked hamburger). Unfortunately Sparky didn't live too long after we moved to our sylvan paradise on Crawford Road in East Brandywine Township in Pennsylvania from our townhouse in center city Philadelphia. 

At this time of my life I often think about our past experiences. So many good memories. This one of Bill and Sparky getting ready for our 1980 Christmas is one of them.

Have a happy Christmas Eve folks!

Thursday, December 23, 2021

A Zoom Call With An Old Friend


BERJAYA
Bill P. (far left) digging in at the Girard Bank Trust Operations Department Christmas buffet 1979

 This morning I had a Zoom call with an old friend from my Girard Bank days. His name is also Bill and he was also my boss. The picture above is at one of our bank's annual Christmas parties.  Everyone brought something in to eat and share with fellow Trust Operations employees.

I departed Girard Bank a few years after Mellon Bank took over in 1982. I took this picture I think in 1979. Yes, I was taking pictures even back then. I've always been that annoying person who drags out his camera and takes photos. Be thankful, imagine how many pictures I would have if I had an iPhone back then in those prehistoric digital days.  

My former boss Bill also departed Girard Bank (of Philadelphia) after Mellon Bank (of Pittsburgh) also departed the Philadelphia office and moved to Pittsburgh after Mellon completed its swallow of Girard Bank.

Over the years I've kept in touch with Bill by phone. But with the advent of Zoom I was able to convince him to try Zoom, even though he frequently reminded me he wasn't "technological proficient." In my opinion he doesn't give himself enough credit. Coincidently his e-mail address also has the name "Zoom" in it although that was pre Zoom call era.

In this COVID era I stay in touch with old friends, relatives and former co-workers via FaceTime and Zoom. I am so thankful I can do this. I'm old enough to remember the main way we stayed in touch was by handwritten letters or expensive long distance phone calls. I hear now days they don't even teach cursive writing in elementary school.  

We had a little trouble connecting this morning, couldn't get Bill's image, but eventually he came through and he had a surprise for me. He got a new puppy! 


BERJAYA
Bill P. with his new puppy, "Brooke". She's ten weeks old. Looks like a lot of love here.

Bill's favorite breed of dog are Shetland collies. He and his wife Marie had two of them. One died a few years ago and the other is fourteen years old now. Bill and his wife were reluctant to get a new dog because of their age, their dog will likely outlive them. This is a thought I've had. If my Bill passes before I do I want to get a companion to keep me company and focused here in an empty house of love. I've been considering cats (I love cats) but reluctant because I know cats like to climb and I just have too many things to get knocked over not to mention all my functions keys on my keyboard, a problem my friend Lar has with his cats. 

Bill told me his unique solution to bringing into his family a puppy who will likely outlive him and his wife. He has an agreement with the breeder should he and his wife die before their new puppy, the dog goes back to the breeder. Now that solves a problem for me. My preferred breed of dog is a Pomeranian. The best friend I ever had in my life was "Horace." A Pomeranian that I brought on a whim after seeing him frolicking in a pet store window on Chestnut Street in Philadelphia on my way to lunch. I had no intentions of buying a dog (puppy) that day but I was intrigued and walking into the pet store. The owner brought this little stinky orange fluff ball out to me to hold and that was the end of that story. I bought him on the spot and took him back to work with me then surprised my Bill when he picked me up at the train station at the end of the day. Horace lived a long sixteen years. In the photo he is on the far right. The middle is "T" another Pom we purchased and their puppy "Babydoll."  Horace died in 1998 and we haven't had a pet since. Now, knowing that I can have an agreement that if I get a puppy, he (or she) would have a home long after I'm gone. Of course I won't get any pet while my Bill is still here. But getting a pet will be a way for me to cope with life should my Bill die before me. 

BERJAYA
Bill P and me on Zoom this morning during a point of hilarity. Life goes on. I am so thankful for Zoom. We couldn't have these moments with the old land line phones.

These days I think a lot about my previous seventy-nine years of life. I have so many good memories, some bad, some scary but mostly good.

The picture below is one of the rare ones with me and Bill P. during our days at Girard Bank in the 70's. Bill was the vice president of the Trust Operations department. I was one of his managers along with Joe M., another manager in the photo. 

BERJAYA
Me, Joe M. and Bill P. at Girard Bank 1977

Those were the days!





Wednesday, December 22, 2021

Trouble Leaving Comments On My Blog

BERJAYA



 Recently I've been receiving complaints from longtime blogger friends that they are unable to leave comments on my blog. I'm sorry but I don't have a fix for this problem. As many users of Blogger (Google supported) know, Google doesn't have a Help line. So we're on our own. 

I just went in and changed some of my privacy settings. Hopefully that will correct the problem some of you have been having leaving comments on my blog. 

I've been toying with the idea of abandoning Blogger and going full board with Word Press. However, I am a creature of habit and I've been using Blogger since 2005 and I am reluctant to leave Blogger. That and I find Word Press harder to use and this old (80) brain of mine isn't becoming any more agile. 

So bear with me folks and I'll try and correct this problem. Perhaps the problem is that I haven't been blogging as much as I have in the past years. There were times I was blogging every day and sometimes twice a day. Longtime followers of this blog know that. 

However, if this problem persists I may just go to Word Press. After all I am paying an annual subscription for the privilege of using Word Press. I started a blog over there years ago but I'm ashamed to admit I never kept up with it. And I like the title of this blog "Retired in Delaware". Much to the chagrin of a certain real estate company which would LOVE to have by blog title for their ads.


Good Morning!

 

BERJAYA

This morning I'm off to the eye doctor for a long postponed eye exam. 

Bill and I are settled in for a quiet Christmas. I only have a TeleHealth call today for Bill (his hospice nurse) and a TeleHealth call for me tomorrow then we coast out for the Christmas weekend. 

We don't exchange gifts, haven't done so for years. We used to exchange cards but because of Bill's blindness (he can't see the card) we stopped that last year. The most important thing is for us to be together.

Be safe everyone. There's a new strain of COVID out there. 

Sunday, December 19, 2021

Bill's Medical Update

 

BERJAYA
Bill on his iPad checking the weather patterns

Being a full-time caregiver for a 93 year old man who has suffered two strokes is perhaps the hardest thing I've ever done in my life.

I didn't expect this to be easy. It is not. 

I've read a lot about the obstacles that caregivers face. I was prepared for that rough path. I knew my limitations and abilities but I thought I had prepared myself for what I would be living with 24/7 once I brought Bill home from the rehab hospital last February.

When Bill first came home he was little more than like a turtle on its back. No control over his bodily functions, confused and dejected. There were times when I seriously considered the OTHER option of not having him here at his home where he is most comfortable and well cared for. No matter how fancy or expensive the care facility, he would not received the level of care that I give him here at home. 

Over the months since he's been at home he has managed to get out of the "turtle on his back phase" and pretty much move around on his own. Thank God he hasn't fallen. He's very careful about that. When he first came home he used the walker all he time. He doesn't know although it is available next to his recliner chair in his bedroom.

We still have the bathroom issues but not as bad or as often as when he first came home. He does wear Depends all the time now, which we change daily, necessary to contain any accidents, which still happen occasionally. At first he complained bitterly about having to change his "panties" every day (as we call Depends) but now he realizes that an ounce of prevention is worth a pound of cure.  Like most of us I was squeamish about cleaning up "messes" but I soon got used to that, as I was told by a friend of mine who was his longtime partner's caregiver under similar circumstances. Still, if I can avoid cleaning up a "mess", I'm all for it. 

Bill is still weak, he sleeps fourteen to sixteen hours a day now. He is more easily confused and his cognitive abilities have declined precipitously. It's scary actually that he can't string together the simplest tasks. But as I always say, he knows who I am and he's not in pain. I'm not religious but I say THANK GOD!

One of the biggest problems is his eyesight. Because of his macular degeneration the only thing he can see is shadows, light and color. He has some peripheral vision but zero central vision. I can stand in front of him and he doesn't see me. When I'm out back in out back yard trying to recover our army worm damaged back lawn, he only sees my shadow. When I look at him directly into his eyes it's like looking into the yes of a blind person. He's looking at me but he can't see me and even sadder, I can't see him through his eyes. The eyes are the window to the soul, I can't see his soul.

I feel so bad  for Bill because he tries so hard to have some semblance of a normal life but because of his eyesight he doesn't. When he does attempt something he only makes it worse and then I have to go in and correct the problem he's created. What he did with our portable Hoover vacuum cleaner last week was unbelievable. He couldn't connect the attachments fo he taped them together. The only thing was that he had the attachments on backwards. Then he strung the electrical cord over the HVAC elements around our basement heater.  Why? What was THAT all about?  All he could do was say "I was trying to make it easier for you."  I told him that he could "make it easier for me" if he just left it alone. Then he gets upset and starts crying. 

Sometimes folks I just want to lie down and not wake up. I feel like I'm trapped but I can't let him out of my care. Now don't anyone give me suggestions as to what to do, I know best how much I am capable of and if and when the time comes that I can't control the situation anymore. The most important thing now is to keep Bill comfortable and the best way to do that is to keep him here at home with me and his surroundings. To put him in a facility would be a cruel end to his life and cause me sleepless nights wondering about him. No, he stays here. At least as long as he can get around on his own. 

I can help him deal with his frustration and depression over his lack of eyesight and no longer being able to work on his projects, which has been his life for the past ninety-two years. We have our daily rides, which he so enjoys and our routine, which even if he complains sometimes I think gives him comfort. 

His hospice nurse visits him once a week. Takes his blood pressure and asks him a series of questions. He blood pressure continues to be below the norm that the medical care workers were sending him to the emergency room. We couldn't live like that, that's why he's on home hospice care.

In a couple more months he will have been on home hospice care for a year. I don't know how long that continues. I guess I'll find out. 

Interestingly one of the hardest things to deal with now is his speech. I have a hard time understanding him. Sometimes I can but about half the time he slurs his words so heavily it's like he's speaking a foreign language. I think he talks like that when he gets tired. If I can understand a few words I can understand what he's talking about. And when I can understand his words, often he uses the wrong word. Then I have to try and translate what he's saying.

Then there are the cognitive issues. One thing he can use is checking the weather patterns on his iPad. But the thing with the iPad is that it is touch sensitive. He doesn't understand that so I'm continuously having to clear off a multiple range of website on his iPad so he can see the colors of the weather pattern. I try and tell him not to drag his fingers across his iPad but he doesn't understand. So this is something I have to do several times a day, clear out all the screens he's accidentally brought up with dragging his fingers so he can see his beloved weather patterns. 

I can list so many cognitive things we take for granted but that would be boring and perhaps perceived as being cruel, but her's another one. About half the time he gets out of the car he doesn't remember where the door latch is and he only succeeds in hitting the child lock mechanism and locking us in the car.  I never used that mechanism but you better believe I know how how to clear it after being locked in the car and trying to figure out how to get out. And you know what? He'll do it again.

Bill's waiting on my now to put him to bed. He goest o bed when darkness falls, which now is early. During the summer he, of course, went to bed about three hours later and had no trouble sleeping. Now that he's going to bed at 5:30 pm instead of 8:30 pm, he had trouble sleeping. We (his hospice nurse and doctor) had to double his sleeping pill dosage. 

Our routine at night is I give him his nighttime pills (he also has morning medications). He goes down to his basement bedroom by himself. I go down later to make sure his room space heater is on, because he's always cold because of the blood thinner medication he takes. I make sure his hearing aid is out and he's comfortable. Before I go to bed at night I check in on him at night to make sure his heater is still on, because sometimes it turns off by itself (safety feature I guess). 

This morning I had a scare. I woke up dizzy and nauseous. My occasionally reoccurring vertigo was visiting me. This is when I really worry, what would happen to Bill if I could no longer care for him? I don't even want to think about it. I managed to get get up and go downstairs to Bill's basement bedroom and get him ready for his every third day shower. He hates that but it is necessary. I don't know how I managed but I did and I was exhausted and had to lie down after I gave him his morning medication and prepared his oatmeal breakfast.  Who would take care of him like this if I wasn't around? No one, that's who. I'm not religious but I pray that I will be able to take care of Bill for every day he has remaining on this earth. 



Saturday, December 11, 2021

Tornado!

 

BERJAYA


Devastating deadly tornadoes tore through five midwestern US sates last night. 

The loss of human life and property is almost incalculable. I just cannot imagine if one of those tornadoes landed here at our home in southern coastal Delaware. 

My days are consumed with caregiving for Bill. I'm sure that there are were many caregivers in those states that were hit by the tornado last night. I always say to myself, when I'm having a difficult time with Bill (last few days have been a challenge as his cognitive and memory deteriorate), "it could be a lot worse." At least we have a basement. 

Lately I've been giving a lot of thought to an eventual move to Palm Springs. A time when I will need a caregiver. Entering an assisted living facility is totally out of the question for me. I'll end my life before I consign myself to one of those fancy prisons. Good for some people but not for me. A slow death for sure.

I'm not surprised at these tornadoes. Just a few days ago it was freezing around here. Today the temperatures reached seventy degrees. Tomorrow we're back to freezing. What the hell is going on? Climate change, that's what.

We are living in tumultuous times folks. I remember growing up in the boring Fifties. Even then I knew those time were boring but I'll tell you what, I'll take boring now. What with our very democracy being threatened by the Traitor Trump and his enablers, something I always took for granted living in the United States. We would always have our democracy. But it appears that we were very naive in taking our democracy for granted. This is a subject for another blog post so I won't go down that rabbit hole now.

Be safe folks and be grateful that those tornadoes didn't hit you. Notice I don't says the old "thoughts and prayers" because I don't believe but I do have compassion for those folks. Even the Trumpers.





Saturday, December 04, 2021

Random Observations on a December Morning

BERJAYA
Late yesterday afternoon sun on our cozy home (in the background). 


 What? Yet another selfie of yours truly in a hoodie on his property in southern coastal Delaware? Why not?

Every morning I send out a good morning meme to a select few of my friends and fellow bloggers. This photo was taken late yesterday afternoon at the edge of our almost one acre piece of Heaven here in Sussex County Delaware. This was this morning's meme. I got the idea to send our "Good Morning" memes from my fellow blogger and friend Ur-Spo (aka "Dr. Spo"). I find it's a nice way to stay in touch with friends to let them know I'm still alive and of (somewhat) sound mind.

Now for random observations:

I'm having a hard time getting into the Christmas Mood. I haven't even selected my Christmas cars yet. For several years now I've sent out personalized Christmas cards with photos of me and Bill. I'm not going to do that this year. We're too far gone physically to spoil our friend's Christmas by sending a scary of Two Old Men. Not a pretty sight these days of moi and my husband. Sounds harsh but true.

Yesterday was my annual full body check at my dermatologist. I've been having these annual full body checks since 1994. Almost every time I have actinide keratosis spots burned of various parts of my body. Yesterday was no exception. I'm always embarrassed by exposing my body in my old age. Even though I weigh about the same as I had in my youthful heyday, (160 to 170 lbs), my skin has sagged. And I have developed a stubborn small annoying pot belly. Sorry to disillusion any of my blog followers who have only seen my photos of my slim, hardened six ab body. That body is long gone folks, just a memory. But there I was yesterday, stripped down to my Fruit of the Loom underwear, wearing one of those hospital gowns with an open back, awaiting to be examined by a young lady (why aren't their handsome young men in dermatologist's offices)? I was examined, five keratosis were burned off from my forehead to my right foot (whole body) then as a "bonus" she spied a small inflammation on my right collar bone that looked "suspicious." She decided to take a biopsy which resulted in her giving me one stitch. I sit here typing this entry sore on my right right collar bone from that cut in my flesh. Oh the joy. I return in two weeks to have the stitch removed. 

Bill's hospice nurse visited us after we returned from my dermatologist's office. Bill's been on home hospice care for ten months now. He's plateaued health wise but still weak. Not getting better (he never will) but weak enough for him to continue to be on home hospice are. He also had a TeleHealth visit from another nurse who asked him a series of questions. Periodically the hospice care company has to verify continuation of home hospice care. Bill continues to need care.

Yesterday I got a load of mulch. Normally in the fall I hire a couple of local Mexican landscapers to do a fall cleanup. Since I'm not working at the hotel this year, I cannot afford that luxury. In the past I've paid $1,000 for that fall cleanup. The year I asked Jose to "do $400 worth of cleanup" which he did. He did a great job and well worth $400 but he did leave quite a bit for me to do. Yesterday I worked on the far border of our backyard (which is recovering nicely by the way from this summer's army worm invasion) laying mulch. My old saggy body is feeling that workout now, but it's a "good" ache, if you know what I mean. Not a bad ache. I plan on laying more mulch today. I love working outside in our almost one acre of Heaven here in southern coastal Delaware. Like formers president's Ronald Reagan and George W. Bush who found relaxation in clearing brush on their estates, I like to do yard work in our backyard. By the way, remember my campaign to rid our garden shed or mice? After catching about thirty-three mice, I think they send they word out though their mouse community (I wonder if they have a mouse Facebook account), our shed appears to be mouse free. Empty traps the past few days.

Looks like this will be the second year in a row that Pat and I won't be in Palm Springs. COVID is the culprit. I can't go anyway because I need to be here to create for Bill. 

I am so thankful that Bill is home and I can care for him. It's a job, I'm on call 24/7.  He hasn't had any "accidents" lately but he does wear Depends daily. I have to change them daily, wash him off and put new ones on. Hey folks, it's one thing doing this for a baby but trying doing it for a 170 lb inert man. Quite a challenge but we have the routine down to a system. Again, I always say "Bill's not in pain and he knows who I am."  That's my measure. I don't even want to think what I would do if the situation was otherwise. 

Bill continues to fight depression because of his failed eyesight. He's always used to doing something, working on one of his projects. He can't do that now and it frustrates him so much. Frustrates me to because I can't do much to alleviate his frustration. Yesterday was trash pickup day, I let him bring our trashcan back as well as our neighbor's. It's good for him to do something other than just sit in our sunroom and doze off all day.  He days are only interspersed with me taking him for his daily ride and his meals. It's a cliche but we do take each day one day at a time. 

I don't remember if I posted about that leak in our basement wall from ground water from the outside. The sealant around the sewer pipe failed and after a rain, some water condenses on the wall and drips down to the basement floor, on the other side of the drywall of our wall to wall carpeted media room. I've been in contact with a local repairman who specializes in basement and crawl space problems to fix it. That was three weeks ago he came by, took a look and said he would give me a bid in three weeks. That three weeks was up Thanksgiving Day.  I followed up this week and I was told he would be out yesterday to give me an evaluation. He didn't come out. I called and was told he had a family emergency (take his child to the doctor) and would be out this Monday. This whole basement leak is hanging over my head like a dark cloud and I'll be glad when it is fixed. Same with Bill, whose driving me crazy by keep asking me "When will he be out to fix that leak?"

Do I still have anybody reading this post? I've gone on a lot longer that I usually do in my blog posts. Congratulations if you have made it this far because this post comes to an end now. I'm off for our regular ride and visit to our local favorite supermarket. 

Have a great day everyone!




Dance With Abandon

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BERJAYA