And Ya Wonder Why I'm Stressed

This goes along with "a day in the life" of a chronically ill patient.

I have been trying to get my CellCept refilled.  CellCept and plasmapheresis keep me alive.  I'm not being melodramatic;  I can assure you that if I stopped taking CellCept (which I did when I had Jacob, and it wasn't pretty), and plasmapheresis I would eventually die.  SO.  Pretty important that I get my medication.

On December 27, 2011, Express Scripts called my doc to see if he had meant to change the dosage on my CellCept (from 4 pills a day to 2).  NO response.  I called at the begining of January after I received one bottle of CellCept with the directions of 2 tabs a day, and it was a 2 month supply at that dosage.

I'm supposed to receive 3 months supply, and of course, the right dose would be nice.  So I called Dr. Sullivan's office again.  Called them 3 days in a row before someone called me back.  The office manager called back, and ASSURED me it would be taken care of.

So I get a letter from Express Scripts saying that it's too soon to refill the CellCept.  Being the follow-upper that I am, I e-mail Express Scripts to see if I can get the details of the script to make sure it's correct this time.  So they get back to me, and it IS for 3 months supply this time....of TWO tablets a day.

{insert screaming, ranting, raving, and pulling of the hair}

So.  I called Express Scripts to double-verify it was wrong before I start calling people ripping their heads off.  They confirmed it was wrong, and cancelled the prescription completely.  So Monday (2 days ago) I called the office manager again and asked her what I had to do to get the correct medication.  I asked her fax in the RIGHT order, gave her the fax number, repeated the information twice, and asked her to call me when she had done this.

{chirp chirp chirp}

Yup, that's what I've heard.  It's Wednesday now, and I just called Express Scripts to see if the doc had called it in.  You guessed it:  Nope.

So I'm BACK on the phone to the doc's office, and get a gentleman who told me my doc got a new nurse, and asked me if I would like to give it one more try with HER (to get it done correctly).  I said absolutely not, I want to talk to someone in charge.  So I got the "supervisor."

Left a message with this supervisor, so we'll see what happens.  If they can't get their proverbial poop in a group, I WILL be seeking a new neurologist. (Which I already want to do, but my husband doesn't think I'm being reasonable....I'm belittling and condescending to my docs.)  Which I don't agree with, but in situations like this, if I was:  Hmm...wonder why???

And this is ONE of my many, many medications.  December 27th was 35 days ago.  Thirty-five days for one, life-saving medication.  Sure am glad I haven't run out of it!