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A friend pointed me at https://siderea.dreamwidth.org/1377224.html - asking if I could provide some context and response.

 

In HIT-land, this article from the ONC best describes what the term “patient matching” means: 

For the uninitiated, we use “patient matching” in health IT as shorthand to describe the techniques used to match the data about you held by one health care provider with the data about you held by another (or many others). In practice, patient matching is the process of comparing different demographic elements from different health information technology (health IT) systems to determine if they refer to the same patient.

I’d like to add in here, that you can have patient matching requirements within the same provider organizations (for example, if you have different systems to help each department do their work better. Pathology, may have a different system from Radiology, may have a different system from Oncology, etc…In all cases, it’s important that each system be able to communicate and identify each patient as the correct unique patient. Where you have a source of all truth registration system, and a requirement that each departmental system uses the same medical record number (MRN) from said registration system, this is relatively easy – but even the registration system will have a percentage of duplicates or near matches. I’ll get to that in a bit.

When you have different organizational systems needing to access each others services, the problem becomes more complex. For example, as is common in healthcare, a hospital system may have radiology and lab services that local providers can refer to. These providers may or may not be in the same parent system – and usually have an EHR different from the hospital system’s EHR (why? Because different EHRs do different things well – and an EHR that is optimized for inpatient use is going to have different features and requirements than one optimized for ambulatory care (like when you go to your PCP). Because these are individual entities and because we do not have a national patient identifier, medical record numbers are going to be different between the two systems.

So how do you resolve whether or not a patient presenting at a lab with an order from their primary physician is the same patient as someone already in the hospital system’s EHR? Do you create a new medical record number (sometimes yes), do you attempt to match a patient with an existing patient? What if the person taking patient information at registration misspells a name? If a new record is created based on a misspelling, that’s a duplicate. What if SSN or DOB information is transposed – there’s more duplication. What if two people with the same name and DOB show up to the same facility (not as uncommon as you might think)? There’s the SSN, but what if they have similar SSNs – or what if you’re still not sure? So duplicates and near matches are endemic to the registration system, and the issue is only compounded when you are trying to identify patients between systems.

That’s where patient matching software comes in (EMPI is a term you might hear with regards to patient matching). There are a number of software vendors out there that specialize in this: Initiate, NextGate, 4Medica, and many many more – this on top of about a bazillion home grown solutions that allow for matching within various custom software and propriety solutions. Each have their own flavor of how to do patient matching. All have a concept of “scoring” a match and thresholds. All of them share similar problems with regards to scoring matches and defining thresholds. And in every EMPI-adjacent project I’ve ever worked on, I *usually* hear something along the lines of “You’re the subject matter experts, so how can you help us [the healthcare system] figure this out” but the true subject matter experts with regards to patient matching is the provider organization itself.

What is this threshold and matching business? Well, EMPIs (and other patient matching system) work to match certain demographic characteristics of a patient. Most organizations use Name, DOB, often SSN, and sometimes gender as a bare minimum to establish identity. But in this data set alone you have have misspellings, phonetic spellings, nicknames, marriages, divorces, name changes, gender changes, transpositions in numbers between month/day and day/month systems depending on who is entering or giving information, bad data entry. Some of this can be mitigated if the patient has a rule for themselves to only give their full legal name (like I do) but some systems include a middle initial, some don’t…any time there’s uncertainty, you have an opportunity to create a near match or a duplicate. So EMPIs have created ways to allow other demographic data to be included in patient match – maybe a driver’s license can be scanned in, maybe a street address can be included, maybe a parent or spouse name can be included. But each of these have varying levels of reliability, so you may not want a street address, for example, to have equal weight to an SSN. Or maybe your provider organization has opted to do away with using SSNs as identifiers because of high rates of identity theft in your area, so they’re not reliable indicators of identify and you want to de-emphasize the role an SSN plays in identifying a match. This is weighting. Once all of the demographic indicators are calculated and weighted, you come up with a score. A threshold is a score that defines two things: 1) a score over which you are certain enough of a patient’s identity based on match that you automatically link your action (be it an encounter, a clinical note, a lab, a registration, an imaging study, etc) to a patient record ; and 2) a score below which everything should be considered absolutely not a match so don’t link it. This defines a range between which a score means manual review is necessary to resolve any matches/duplicates/etc. This is point at which software says, “We found a probable match to your patient, but need you to review to take next steps”. There are some organizations that have an upper threshold of 100% (ie., all demographics match exactly) and a lower threshold of something like 20% with very large manual review range – other organizations have a much narrower range for manual review.

 As healthcare systems grow and change to respond to market dynamics in order to continue to provide services – more and more EHRs and other clinical systems need to be able to talk to each other and to be able to accurately and efficiently communicate about the same unique patient across systems. This also introduces more uncertainty – and again, more opportunities to create duplicate records within an entity’s system. So back to the original question – yes 20% seems about right for duplicate records, and yes, the problem is expected to grow.

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I swear it's the season for engagements :)

Congratulations [livejournal.com profile] slipjig and [livejournal.com profile] figmentj!!!!!

*squeeeee*
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I'm waiting for something at work, and was poking around at old LJ entries.

I posted this one in 2003 - when this concept had not quite come into practice. Though it could be done within certain closed systems (ie., within apps hosted by Domino Servers and Sametime).

We use it all the time now with the advent of web services - just look at your LJ profile, if you're logged into AIM, Yahoo, or any other service on your desktop, your phone, etc - it'll show you as logged in. At that point in time, Meebo hadn't *quite* come along yet.
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It's been a very long time since I've cut down my reading list. I've added a lot of people over the years, and then over time, lots of journals accumulate.

At this point, I've had to sit and think hard about how we communicate. If we communicate in person when we visit, but don't communicate much or at all on LJ? I've probably pulled you from my reading list. Likewise, if we interact a lot on FB, but hardly at all on LJ? Ditto. Of course, if we never communicate at all - either online or off - why are we reading each other? It's a using time wisely thing.

If you want to get in touch with me? Please email me directly or via LJ mail.
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At some point, I'm considering getting a DSLR.

The question is Canon or Nikon, and why?
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This Saturday, the kids and I had a *blast*. We went shopping a couple of times, went mini-golfing, saw Thor, Spud was invited to fight with and against pirates, and given a balloon sword in the process.

It was a *ton* of fun.

And Spud was totally my fashion consultant.

You see, I have a wedding to go to this weekend, and do *not* have a dress appropriate to wear. So while I'd been working with a friend and her vintage store - while we were shopping for girls' dresses, I figured I would also look at women's dresses just in case. Spud was all over this, and kept picking out colors and styles that he thought his mom should wear. *laugh* it was *awesome*.

He has pretty good taste, too.

He also insisted on carrying my choices until it was time for his sisters to keep an eye on him while I very quickly tried on clothes.

I did find one. It is *awesome* and I can't wait to wear it. :) It's all the better knowing the kids helped pick it out and helped identify it as a good candidate.
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So this is a special "Ask me anything"

Questions are not screened.

I'm coming up on living gluten-free (other than 6 weeks when I had to resume eating gluten in preparation for an endoscopy) for 1.5 years in a little bit (specifically, I officially went off gluten at the end of January, 2010).

Do you have any questions about my experience? I'm not looking to give expert advice on clinical situations, here - for that you'll want to go talk with a doctor. But! If you have questions, and I can answer, this is a good time to talk about it. I *am* going to leave this post public for a short time.
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Social change is a *good* thing. There are things going on in this world that seriously need to be looked at, considered, and changed. I'd love to see them change faster rather than slower.

See:

- Rape culture dismantled
- How we treat members of the GBLTQ community (please forgive if I've missed an aspect).
- Providing access to good *affordable* medical care for everyone

Oh well, heck, there are lots of them.

However. I'm increasingly disturbed by emails I get by Change.org. My concern is that someone writes in about a compelling issue, and then an email goes out to all members, and then by brute force they go in and swamp the "offending party" in order to effect change. It seems like it works a good portion of the time (I'd like to see numbers).

There's a problem, though. Sometimes there are unintended consequences. I read one recent petition to try and get Girl Scouts to stop using palm oil in their cookies...

Almost every type of Girl Scout cookie contains palm oil, which is commonly harvested through the clearing and burning of irreplaceable tropical rainforests.

This method harms the global ecosytem, endangers local indigenous populations, and threatens the survival of orangutans, humankind's closest relative


However - it's not really as easy as that. Those local indigenous populations? Rely upon things like the production of palm oil to sustain their communities based on what I remember from some of my coursework. National calls to change how we eat *do* affect those populations, particularly if it means they need to find a replacement for their economy. So what do you do? Support the orangutan? Support the indigenous population with a fragile economy? Save the rain forest?

How about rather than solely succumb to armchair mob force tactics, research organizations that support local groups. Should we use less palm oil? Maybe, maybe not - would it be better to find ways to teach local populations to not use slash and burn agriculture thereby preserving rainforests and still support their own economy? That may be a pipe dream - but it would at least support both needs/wants/goals.

Quilting

Apr. 7th, 2011 10:20 pm
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I went to my second quilting class tonight.

Tonight's class was "Making Friends with your Walking Foot"

In quilting terms, this is a special foot that you use with your machine that helps prevent material from gathering when it's super thick - ie., when you're trying to feed through two layers of fabric + batting (the layer of polyfill, or cotton, or bamboo, or whatever you decide to fill your quilt with).

Now...let's back up a second. The first class I took was a "piecing" class. It was a class to solely learn how to piece together bits of fabric to create a "top". This was not quilting. Quilting is when you sew the top, the batting, and back together. Binding is when you apply fabric around the edge to finish off the quilt.

Today's class was essentially learning how to quilt - because most of the people in the class had never quilted before. (Including me).

So...walking foot. I set my machine up with the walking foot I'd purchased during my last class - that we tested on my machine. My machine is not a standard machine - it's also a quilter. What my instructor and I found odd was that it didn't already come with a walking foot - most quilting machines do.

Today we learned why. The walking foot - despite somehow working last time, did NOT work this time. The manual had no information about how to use a walking foot, instead discussed changing the pressure on the regular foot when quilting. So I tried that instead. Lo and behold? It worked! Not only did it work - but it was *simple*, and I didn't run into the challenges my classmates faced. Tonight's instructor announced "We ALL want your machine!"

So I worked on quilting my quilt sandwich (18" sq top, batting, back), including some decorative bits. The instructor joked with me asking me if I wanted a job. (Funny, that's the second time I've been asked that by two different instructors).

What I learned tonight, though is that I had *fun* quilting. I was afraid I wouldn't like it with the way other people in the class before seemed to dread it - and how much people seem to be quick to hand it off to someone else to do. I genuinely enjoy it, and am looking forward to learning stipling and various and sundry other little quilting techniques.

I also picked up two stencils - they'll be useful for my first quilt - and I'm still trying to figure out what to do for a couple of other quilts I'm working on.
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Welcome to my home on Dreamwidth.

I'm friendly - really I am, but my journal is and always has been a non-public entity. But please do leave a comment or send me a message if you want to be added.

I do have a public blog that I occasionally post to at Sound Stepping
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Discussion of current bill proposed to go to House regarding abortion funding and the definition of rape - discussion of rape culture - warning )
So what can be done? Write to your Representatives. Write to the sponsors of this bill. Support your local Rape Crisis Center. If you don't have one local, support RAINN (National) or BARCC (Boston).

Speaking of BARCC - I'm walking with Team Venture on April 10 as we Walk for Change.
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So it had a slow start, but...I'm getting back to my cooking blog and have multiple posts lining up again. I actually have lots of pictures from stuff I've cooked *laugh*, just didn't have time to write up posts about them.

Another thing I've learned? So totally can't take pictures with my phone. The difference is so notable.

So - in case you're interested and need the address again:

http://www.intrepiddelicacies.com

also - if you're on facebook, there's a fan page for Intrepid Delicacies, where I post little blurbs now and again, when a full post isn't in line? Ready? etc...

Moving

Jan. 29th, 2010 12:10 am
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Everything is packed and loaded in the truck and car and we're about to head out.

I'm not sure how much I'll be able to post to LJ publicly while I'm on the road (I'll try, though).

It's been a long day. Thank you everyone here in MN who made today work out successfully!

Thank you in advance to those in Boston who are planning on helping. You have *no idea* how much I appreciate you right now.

BTW - truck is *super* full - apartment is on a hill, I'll be parking on the hill facing *downhill* or we might have issues. We definitely had Tetris Masters helping to load this truck!!
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So...I haven't heard from the moving company yet. I'm just starting to think through details.

1) We'll know on Wednesday what time they should be here in Minnesota to load.
2) The driver won't drive more than ~500 miles/day
3) There is just under 1400 miles between here and there
4) Even if the truck pulls up late Thursday and s/he heads out of town Friday morning, that should put an arrival date on Sunday.
4a) Mitigating factor would be if we're not the only load on the truck and there are other pickups/dropoffs. I will ask that question when they call on Wednesday.

As an aside...

If anyone knows of a nice couch/love seat/etc that's looking for a new home - please let me know - I would be interested in taking a look.

If the truck *doesn't* arrive on Sunday - I know what I'm doing :) I'm looking for said furniture! (and going grocery shopping!)
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[ETA as I just opened this up as a public post:

I am moving to the Boston area. [livejournal.com profile] shadesong has been kind enough to help out, and in order to help coordinate a clearing house of sorts, I've opened this post. More information will be shared to those who are able to help out.
]

This is going to be the tricky part. The truck could be in as early as the 31st. Might not be in until the 5th. When the truck gets in, I will need people to help unload the truck.

If the truck arrives on the 31st, it may potentially get there before us. I will be in contact with the driver throughout the trip. I will also be in contact with point people back here and out there.

Needed: people to help unload - please note days specifically able to help. If all goes well, the truck will arrive in mid afternoon on the 31st, just about the time we pull up. We're expected to arrive around 2ish on the 31st.

I figure we'll need probably 3-4 people who are able to lift mattresses/dressers/etc...we'll have a 6 hour window. The girls will be available until they start school sometime that week - my mom will be available all that week. My aunt and uncle will be available, however, they are unable to lift anything heavy - they will be up in the apartment helping unpack/put away/direct traffic.

THANK YOU!!!!
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Teens and parents of teens discuss, please...here or over in [livejournal.com profile] shadesong's journal.

[ETA - I've decided to go ahead and open this one up for a little while.]
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This journal is friends only.

If you would like to be added please leave a comment, and I will get back to you shortly :)

Really, this is a friendly place - I just like knowing who you are!
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